Albert Farrugia has worked in the field of biotherapeutics for thirty five years and has held senior positions in blood centres, plasma fractionation manufacturers and government regulatory and policy agencies. He serves currently as the Senior Scientific and Regulatory Advisor to Kedrion S.p.A. He has served on international bodies including the WHO, the Council of Europe, the World Federation of Hemophilia and the US and European Pharmacopeia Commissions. He is an adjunct Professor in the School of Surgery in the University of Western Australia and has published over 170 contributions to the international literature. He is a recipient of the Australia and New Zealand Society for Blood Transfusion’s Ruth Sanger Medal. Albert Farrugia is a member of the global bleeding disorders community and advocates for access to treatments for people with rare chronic diseases. He is a postal and military historian, a passionate follower of music and politics and an amateur artist.
Delivery of care to patients with chronic diseases – facilitation through digitization
Patients with chronic disorders require a constant and ongoing engagement with their sources of care, including tools which facilitate therapeutic monitoring and personalization. Many such individuals are members of patient organizations able to advocate for them in various areas, also requiring tools for these purposes. Around this landscape of needs a cohesive framework of digital technologies has evolved to assist in a sophisticated and efficient delivery of care and engagement. This presentation will exemplify these developments through two groups of individuals – people with haemophilia and with immunodeficiency – who have a lifelong dependence on therapies derived from blood. The lessons of these communities in developing digital tools will be used to suggest applications in other areas of health care.